Monday, September 20, 2010

To Cocktail Party, or not to Cocktail Party?

As the NMRF Cocktail Party draws near I’ve been wondering if I should attend if I were invited. Because I am still blind to the trial it is not an ideal time to present myself to these people as a ‘success’. And if I don’t go are they going to think that we have failed?

So, I have been invited and the doctor has asked that we not attend this year as the data is still being collected – phew!

He has asked that we be invited next year where the data will have settled and it’ll have been over a year since my operation and my device will have settled.

Things have really settled down in regards to my device. I am no longer so stressed about things as my body is behaving okay now and I am happy to wait until the end of November to know whether I am on or off. What will be, will be!

- Martha

Thursday, September 16, 2010

A Few Bumps

I haven’t written for a while as my life got turned upside down and I needed some time to figure out how to turn it right side up again.

It all started 2nd September when I went for my 3 month check up since having my device put in. All the test went okay until the last part where I had my device turned on or off (still don’t know where I’m at with that???). I felt this strange sensation in my left hand. By the time I got home my left arm and leg were spasming a lot, I was in a lot of pain and I couldn’t do anything for myself. I was in a lot of distress. I saw the doctor again on Monday and whatever he did relieved the stress to a point but it did come back again. I saw the doctor again on Wednesday and he told me that there was nothing he could do for me. I was probably really exhausted and I just needed to go on my holiday, relax and have a drink.

I did just that and day by day I got better. We went to Cairns, which was lovely. We mainly just relaxed by the pool, read (The Lost Symbol by Dan Brown – awesome book!), swam, sunbaked (I have an awesome tan!), shopped (got the best swimmers) and ate!

I am still really tentative as to how stressed I am as I am not 100% healed from the twitching pain but I do feel rejuvenated in spirit!

- Martha