So, the side effect was a BIG problem. It just kept getting worse instead of fading and I had to ring Dr Krause and make an appointment to see him. I went last Tuesday but the programmer he had was old and incompatible with my device. He could only turn down the setting with my programmer which was a relief. I felt a bit dumb as I hadn’t thought of doing that myself. Anyway, I also met the physio and I have been put on the waiting list for some rehab.
I went back again on Friday and Dr Krause had a new programmer that worked. The setting he had hoped to use was a no go as my face twitched up on the left side. The setting we settled on is okay but I am still not 100% comfortable. I think I’ll ask him for a new setting next year if things don’t feel better by then.
This device is hard work as it is frustrating to want better but have to settle for mediocre.
- Martha
